If my relative is referred for predictive genetic testing as a result of scientific research that I participate in, do they need to disclose this test when they apply for insurance?

Yes, but only in the limited circumstances as set out in the Code (applying for life insurance over £500,000). If, as a result of genetic testing through scientific research, a relative who is not part of the research project is referred for genetic testing (called cascade testing), that relative’s genetic test result would not fall under the exemption of scientific research and they may need to disclose the result, if they apply for insurance. However, if your relative was referred for predictive genetic testing as part of a research study, they will not be asked by insurers to disclose any predictive genetic test result acquired.